It’s a rollercoaster of highs and lows, but I am here and succeeding, well just !
Since my son received his diagnosis of “being on the Autistic Spectrum” life has become better in some ways but it’s been an uphill climb.
For anybody chasing a diagnosis, no doubt one of the factors for this is the hope of help and support that should follow. Unfortunately for us this didn’t happen, we were happy to get the diagnosis, but all we had to show for it was a piece of paper saying so, no advice, information or guidance as to what happens next.
We had to visit the GP numerous times before we were eventually referred to CAMHS for further help and assessment, and even she looked like a rabbit in the headlights having not dealt with anything like this before. She was also very intent on trying to give us medication as parents for stress, anxiety and depression.
Eventually having waited nearly 8 months, things started to happen, Psychiatrist, Medication, QB Test for ADHD, Family Therapy, parenting workshops and Psychologist sessions.
As a result things are better, but we still have numerous meetings with his school, they will put things in place and all will be well, then things slip and which causes distress to my son.
My advice for anybody who has got a diagnosis but no further help is to keep on at people, you have to fight to get anywhere, GP, CAMHS, Autism Outreach, Local Autism charities and organisations – often these will fund workshops and courses which we have found very useful.
At the end of the day, there is help in many forms, you just need to find it, don’t give up – you are not alone.